Welcome …

Welcome to the MLD Family Personal Pages. Here you will see a quick update of all recent blog posts.  Click on the individual blog title to see the rest of the post.

If you are a primary caregiver and wish to have your own MLD Family Personal Page please click here.  Please note that if you already have a blog we can automatically re-post content from that blog to your blog here so you can be part of our community, too.

If you wish to learn more about MLD please click here to be directed to the MLD Foundation.

Are you recently diagnosed? Rest assured that you do not need to deal with MLD alone. In addition to a Personal Page to keep your friends and family up to date, you can joins the hundreds of other families around the world dealing with MLD on our private MLD Family Discussion List. Learn more here.

The Latest Updates from the MLD Family

• Wednesday, January 28, 2009 6:31 PM CST from Olivia's MLD Family Blog

  Hello friends and family!Hope the New Year is finding you all happy and healthy. We had a wonderful Christmas week with our family (Nan & Pop and Uncle Mark & Aunt Kathy came in from Michigan), and as always Olivia enjoyed everyone’s company. She was, of course, bright-eyed every time Pop played Christmas carols on…

• Dec. 24th, 2009 from Danielles MLD Personal Page

  Merry Christmas Everyone! As this year comes to a close all of us do a bit of reflecting and hoping for the new year to come. There are many things to be thankful for and to appreciate. Many things have happened this year that has brought about a certain kind of humbleness. A certain kind…

• Jan. 10th, 2009 from Danielles MLD Personal Page

  Brrrr………..it’s a bit cold and has been for some time. One could say we are living in the frozen tundra but we are nice and snuggy warm in the house. Glad the holidays are over. Life is back to “normal” or a distorted version of. Danielle has been pretty well. She’s been having funky temp…

• Feb. 9th, 2010 from Danielles MLD Personal Page

  Hope this update finds everyone doing well. Wish I could say the same for Danielle. The past 3 days or so have been pretty rough for her. To this point she hasn’t stopped seizing for over 24 hours. This started 2 days ago when she had a couple of seizures in a few hours which…

• Feb. 11th, 2010 from Danielles MLD Personal Page

  It is with a very heavy heart that we write that Danielle peacefully passed away this evening at 5:50pm. Tony and I were most fortunate to hold her in our arms as she took her most graceful, last breathe. She fought very hard to the bitter end……and she won. We won! She is no longer…

• Memorial Location from Danielles MLD Personal Page

  It was brought to my attention (thanks mom) that there are two funeral homes in Spring Grove. We will be at Spring Grove Funeral and Chapel off of Wilmot Rd. Tues 4-8 and Weds. 10am service. Her obit. will be in the daily herald sun. & mon.